A Crohn’s Update (From the Middle of It)
I’ve talked about Crohn’s disease here before, so this isn’t the beginning of the story. It’s more like a pause in the middle—one of those moments where you stop, look around, and take stock of where you actually are. I was diagnosed with Crohn’s in 2001, after a bout of food poisoning that flipped my body upside down and never quite put it back the same way. Over time, my large intestine became about 90% scar tissue. That’s not dramatic phrasing—it’s just the reality. Scar tissue doesn’t heal. It doesn’t reverse. It doesn’t care how well you behave. For a while, I was on Stelara, and it helped. Then life happened—insurance gaps, reality gaps—and I was off it for about a year and a half. When I finally had another colonoscopy, the news landed quietly but firmly: the Crohn’s had spread to my ileum. That moment held a lot. Fear. Grief. Anger. A strange sense of inevitability. Also—relief. Because now I knew. I’m back on Stelara now, every four weeks. And here’s the part that’s...